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Monday Minute: Holiday Hangover
After a packed holiday weekend, I was surprised when James joined me in the kitchen Monday morning at 5:45am, dressed and ready.
Or so I thought.
Monday Minute: Peanuts in my pocket
As moving day nears we’ve been going out to dinner a lot more than usual. One of the kids’ favorite things at Five Guys are the vats of peanuts you can snack on while waiting for your food. Though James had consumed an entire cheeseburger and bucket of fries (unusually large amount of food for him) he wanted to bring more peanuts with him for the walk home. I gave him a small handful, immediately regretting this move because of the distraction they were sure to become. Trying to remedy the situation I took the peanuts back and said, “Here James, let’s keep them in your shirt pocket so you can snack and walk safely down the street.” Peanuts in James’s pocket? Obviously only a crazed, stressed-out pregnant woman would make a move like that.
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James is in italics, my responses are in bold.
Hey, hold the door open – pay attention!
Mom, it’s dangerous to have peanuts in my pocket.
What?
It’s too dangerous.
Look ahead while you’re walking – that’s crazy talk.
It’s not good to have them in this pocket – get them out.
Use your manners, it’s not a big deal.
It’s not valid.
Valid?
It’s not appropriate to put peanuts there.
Fine. (I take the 5 peanuts out of his pocket and hand them to him.)
5 minutes later, still walking home
Hey mom, want to play?
Play what?
I planned out a peanut matching game. Want to play?
Sure.
Okay, question 1: Which one would an elephant eat?
How is that matching? Okay, how about that big one?
All of them. Question 2, which one has an opening?
That one.
Good job. Question 3 – which one is the saltiest?
How am I supposed to know?
You can lick each one.
No thanks. How about that one?
See the salt on this one? Okay, next question – which ones match? Look carefully.
Those two.
Right. Since you got a point, you win this invisible bag of money.
Wow, really? I’ll use it to pay for my invisible new wardrobe.
Walking into the house several minutes later
Okay, here – since you played the game you can have these peanuts for a prize.
Thanks.
But I need that bag of money back.
Special Needs Events in NYC – May 2012
Seminars, concerts, workouts, conferences, even yoga sessions – don’t say you were bored this month! Sorry for the last minute posting on some of these – it took forever to combine all of the May event emails (which is kind of a good thing).
MAY 2012 EVENTS:
Ongoing, every Sunday in May (and June): WSLL, Challenger’s division. Special needs baseball at Riverside Park. Late registration available – email me for details.
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Tuesday, May 8, 6:30PM
Managing Your Child’s Behavior: Tools and Strategies for Parents, with Dominick Auciello, PsyD, Child Mind Institute
WEDNESDAY MAY 9
Dr. Ravitz, “Raising Resilient Children” in partnership with Tuesday’s Children @ The Conference Center, 130 East 59th Street New York, NY 10022, 6-8pm in NYC
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THURSDAY MAY 10
Dr. Dickstein, “Raising Healthy Children in a Digital World” @ 92nd Street Y: 6:30 – 8pm
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FRIDAY MAY 11, 12:00-1:00PM
Live Speak Up for Kids Facebook Event: Dr.Fernandez, “Managing Problem Behavior: Strategies for Parents and Educators”,
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May 12 in Central Park, Achilles Kids Workout – call 212-354-0300. ext. 305 for more info.
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Tuesday May 15th 10AM – 1PM |
Understanding the New IEP | Lori Podvesker, M.S. Ed., Family and Community Educator, Resources for Children with Special Needs |
- Pre-registration is required by calling YAI LINK at 212-273-6182.
- Parents and caregivers only! No children please.
- Location: 460 West 34th Street, 11th floor, New York, NY 10001
- Structure: 1st half (Presentation), 2nd half (Support)
- Fee: None!
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May 18, 9:00AM at PS 163 (W. 97th and Amsterdam) – final meeting of The Foorce, “Special Needs Summer Activities and Programs”
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May 19 at JCC – Achilles Kids Workout – call 212-354-0300. ext. 305 for more info.
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May 20
DMF Spring Concert – “We Will Rock You – A Musical Celebration.” It will be a high energy performance and will have you singing, dancing and “rockin out” in your seats with performances like – I Love Rock N Roll, Aquarius, This Love, a song medley from Elvis, Born To Be Wild, Bohemian Rhapsody, among many others!
The Dalton School
108 East 89th St. (between Lexington and Park Ave.)
1:00PM-2:30PM and/or 4:00PM-5:30PM.
Please RSVP if you will be able to attend by using Eventbrite – http://dmf-rock-and-roll.eventbrite.com/ or if you prefer, contact us at daniel@danielsmusic.org or 212-289-8912.
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Wednesday, May 23
Resources for Children With Special Needs presents: Friendship, Dating, & Sexuality: A Free Symposium for Parents and Professionals
Where: Credit Suisse , 11 Madison Avenue (24th Street) Entrance on Park Avenue South at 24th Street
Panel:
Dr. Michelle S. Ballan, Assistant Professor of Social Work, Columbia University, Leading researcher, writer, professor, mentor, and advocate, disability studies and sexuality; recipient of numerous awards, including the Columbia University Presidential Teaching Award, Services for Students with Disabilities Faculty Award, Association on Higher Education and Disability Recognition Award, and others.
Dr. Chris Rosa, PhD, Dean of Students at CUNY, Serves on several local and national committees on disabilities, is a published disability studies scholar, and a faculty member at CUNY’s MA program in Disabilitiy Studies. A product of New York City public education, Chris was born, raised in, and presently resides in Flushing, Queens.
Brian Schwanwede, Student, Sophomore at Fairleigh Dickinson University (Honors List), English Major, Film Studies Minor, FDU Equinox Newspaper, National Society of Leadership and Success, The National Society of Collegiate ScholarsCOMPASS: College-based Support for Students with Asperger Syndrome
5pm Coffee Reception with Panelists, 5:30pm Program
Please do not hesitate to call RCSN with any questions: 212-677-4650
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Thursday May 24th 10AM – 12:30PM |
Yoga and Relaxation | Laura Mitchell, LMSW, LMT, YAI LINK, Certified Kripalu Yoga Instructor |
- Pre-registration is required by calling YAI LINK at 212-273-6182.
- Parents and caregivers only! No children please.
- Location: 460 West 34th Street, 11th floor, New York, NY 10001
- Structure: 1st half (Presentation), 2nd half (Support)
- Fee: None!
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May 26 at JCC – Achilles Kids Workout – call 212-354-0300. ext. 305 for more info.
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Thursday May 31st 10AM – 12:30PM |
“Hey! Get Back Here!” Learning to Manage Wandering and Elopement in the Community | Lana Small, MSW, Coordinator, Project A.S.S.I.S.T.
Mary Downing, BA, Senior Supervisor, Project A.S.S.I.S.T. |
- Pre-registration is required by calling YAI LINK at 212-273-6182.
- Parents and caregivers only! No children please.
- Location: 460 West 34th Street, 11th floor, New York, NY 10001
- Structure: 1st half (Presentation), 2nd half (Support)
- Fee: None!
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June 2 – Central Park Challenge – CLICK HERE TO JOIN The Foorce!!
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Feel free to email me if you need more information or if there are typos regarding any of the above events. Or, you can add your own events in the comments section below. I’m also collecting event emails for June now through the last week of May so keep them coming!
This Friday, April 27th – Special Needs Summer Activities and Resources (Final Meeting of the 2011-2012 School Year)!
I can’t believe it, but this Friday, April 27th, is our final meeting at PS 163 of The Foorce.
Because I sadly have had to cancel Lydia (insufficient funding, trying to reschedule), the meeting this week will be all about providing resources for summer activities and camps – I’ve collected more than a few over the last couple months of camp fairs and conferences and I’m looking to share. This meeting will also offer an opportunity to find out about and sign up for the casual social group that has met weekly for the last 3 summers – absolutely free and a great social outlet if your child isn’t booked up for the summer.
Anyone and everyone with a special needs friend or loved one is invited to join us – the meeting will be from 9:00am until everyone leaves and small children are welcome (I’m bringing 2!). As usual, the meeting will be held at PS 163 (corner of W. 97th and Amsterdam) and will be in the cafeteria or auditorium depending on availability.
Hope to see you on Friday!
5 hours til dawn; 4 more gifts to wrap, 3 tired kids, 2 are still awake, and the organ was playing too loud: how we feel gratitude this holiday season
**Updated on 12/7/11**
Christmas in NYC has been one of my favorite things about moving to the city – the light displays, the skating rinks, the sidewalk tree stands. But with small children even the best of holiday intentions can turn into chaos. Add a special needs child to the mix and the spiked eggnog becomes more necessity than festivity. So it will come as no surprise that with two toddlers and a disabled preteen many of our family efforts at tradition have only been successful in creating stories that will be retold for years to come.
Something as simple and beautiful as Christmas mass can be a nightmare for a child with autism or sensory issues. There are lights and decorations everywhere, extra people (lots), noise and music, even strange smells. And the holiday services are much longer than usual. Much, much longer. By the end of the evening (or well before), James has his hands over his ears, a coat over his head, or is asking “is it almost over?” in his not-so-subtle worried voice. The organ is too loud, the music is too “sad,” the incense is too smelly, it is too hot, a baby is crying too much. And God forbid there is a brass quartet or a Christmas pageant. Add to that not one, but two toddlers climbing seats, rolling on the floor, screeching, whining, spilling fruit snacks and grapes underneath the pew, fighting over books, and a beloved family tradition begins to resemble anything but tidings of joy.
Then there have been the unforgettables – the Christmas Eve that James, thinking he had discovered a secret chocolate stash, inhaled an entire bar of ex-lax. Or the children’s mass that invited kids up for a front row view of the pageant – I don’t think they envisioned my 2 yr old gleefully riding another child around the altar as part of the play. Or my personal favorite, the Christmas Eve toilet explosions (yes, plural). Among James’s special needs is a plethora of medical issues, one being megacolon (even worse than it sounds). As we found out the hard way, megacolon and prewar plumbing don’t mix.
Despite it all, wrapping presents at 3am on Christmas Eve is always special, even though we are dead tired. There’s something magical about turning around as we finally head to bed and taking one last look at the gifts spilling out from the glow of our Christmas tree – the tree that we excitedly picked out at W. 99th and Broadway and spent hours decorating. There’s even something endearing about being woken up 2 hours later by our ridiculously delighted children. And there is nothing quite so cozy and heartwarming as staying in all day, watching the children open presents, preparing and enjoying a big feast and watching Christmas movies replay on TV, all in our pajamas, and all together as a family.
We consider ourselves very, very lucky. We want our kids to know that there is no amount of tears, ex-lax, altar rodeos, plumbing crises or spilled fruit snacks that will change how amazingly blessed we feel to be their parents, and how simply happy we are to be in this family.
The best way we can think to pass this feeling of gratitude on to our children is to show them the joy of giving. And what better season to demonstrate this tradition? Though our children are still young we have started in small ways – participating in toy drives with scouts, baking holiday treats to pass out to the homeless in our area (and tucking a little $ into the box), organizing Christmas caroling and inviting neighbors to join us for hot chocolate and cookies afterward.
This year we’re kicking it up a notch. On December 16th we are collecting non-perishable food items, household goods, and wrapping gifts for families in need at a local shelter. Many families at this shelter have been touched by domestic violence and have children with special needs. One particular family is a mother with three children, ages 14, 11 and 8, all of whom have some kind of mental health, medical and educational needs. However, the more items we collect the more families and children we can provide for at this city shelter – consider that a challenge!
My day-to-day struggles pale in comparison to having special needs children (or any children) without a home, financial and emotional security, a loving family, even a warm holiday meal. It is my deepest wish that my own children grow up experiencing the pure, simple joy that comes from helping others in need, and some of my proudest moments as a parent come from observing how naturally James shares with others already.
So, do you want to help make someone’s holiday a little bit more merry, a little more worry-free? Please consider bringing a donation to the next meeting of The Foorce (see below for ideas and specific requests by the children). Or if you prefer, you can provide a treat for the volunteers to enjoy, help wrap gifts, or make a card to send along with the care package. The meeting is on December 16th at 9:00AM in the cafeteria of PS 163 (163 W. 97th Street). Can’t make the meeting but still want to help? Email me and I will let you know where you can send donations and gifts.
It is my sincere wish that the gift of giving touches you and your family this season and that you have a happy, magical holiday!
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Gift/Donation Ideas (this list will be updated as I find out more details about the family so check back often):
Canned goods (vegetables, tomato sauce, soups)
Dry baking mixes (breads, cakes, cookies, pancakes)
Uncooked Pasta, all kinds
Metrocards
Shampoo, soap, toothpaste, other toiletries
Hats, scarves, gloves (can be new or gently used, clean and in good condition)
Clothing: for children ages infant through 16 years old. Some specific sizes requested are Misses size 7, Boys size 16 and Girls sizes 14/16, but all children’s clothing is needed. **Clothing can be new or gently used (clean and in good condition only, please).
Gift cards (one of the most versatile donations for families): local grocery stores (for perishable goods), drug stores, barber shops (everyone needs a haircut!), Target, Barnes and Noble (specifically requested), movie theaters, Toys R Us
Family gifts: PG movies, board or card games for ages 5-14 (email me if you need ideas), arts and crafts supplies
Electronic Copy of Special Needs Sports and Extracurricular Activities
I sincerely enjoy receiving email comments and questions, and pride myself on replying personally to every last one when possible, even if it takes a week (sorry!). But, I have finally acknowledged that responding to every request for this handout since Friday’s meeting, while not impossible, is a much larger time commitment than anticipated. 5 long days, 1 fiercely dramatic 2 yr old and an equally unpleasant teething 12 month old later, I have officially given up.
So, here is the aforementioned handout, online for your bulk viewing pleasure! If you got an email from me saying “visit thefoorce.com for the handout,” you have arrived at the right post.
CLICK HERE to open Special Needs Sports and Extracurricular Activities in the NYC Area. FYI, this is an electronic version of the main handout distributed at each meeting (see Upcoming Events for future meeting dates). This handout was edited in October 2011 – I usually update the document 3-4 times per year, adding new programs, resources and events as I find them. Despite the abundance of amazing resources here in the city, I try to limit this handout to 10 pages or less, keeping it manageable.
If you see an error, are looking for information not listed, or don’t see a program/event/activity you think should be included, email me or leave a comment below.
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