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Posts Tagged ‘special needs family event’

Extra Special Event Featuring Surprise Special Guests: July 25th, 12:30pm – DMF Takes It To Broadway!!! (Limited Seats Available)

I am really excited to pass on this announcement from the Trush family:

A generous sponsor has donated the use of the Brooks Atkinson Theatre (where the musical “Rain” is currently playing) to DMF for our members to perform. Hard to believe that we have graduated all the way to Broadway! And if Broadway isn’t exciting enough, we have also been informed that there will be some very special guests performing with our members. As always, the concert is free and we hope that you will be able to join us for this exciting event! Since this will be a private event, all attendees must be recorded on the guest list for admittance and should expect to arrive at the theatre no later than 12:30PM. If you are interested in attending you MUST email DMF at daniel@danielsmusic.org. We now have over 850 people attending but have a few seats left.  If you would like to bring additional guests you must provide their name in the email as well. Many thanks and hope to see you there!

James will be there with my mom, and maybe Ryan. I will be home on baby duty – though she will probably end up there someday, my 2 yr old is not quite ready for Broadway (show is for ages 3 and up).

Congrats to DMF for making this amazing opportunity possible and to the Trush family for all they have accomplished through their hard work and dedication. As always, they remain a true inspiration to my family!

Another Post About Balloons – What Would You Do?

July 13, 2011 3 comments

After reading this post make sure that you weigh in on the newest poll, posted in the right sidebar. I’m really curious about this one because even though I feel okay about how we handled it, I thought through several different scenarios and still feel like there was more than one “right answer” here.

Last weekend at the Natural History Museum sprinkler meetup we were busy having a good time splashing about when other people showed up. The nerve. Not just other people, but other people with balloons. Seriously, can we escape the freaking balloons for one day? One woman, whom I shall refer to from here on out as The Ringleader, brought a pump-your-own-and-let-it-squeal-through-the-air-deflating balloon kit, and was sharing it with any interested child. Including my 2 yr old. At first James didn’t notice – I thought, maybe this will be okay; these balloons look a little different and they are sailing through the sky, no chance of popping. Then one popped.

All hell broke loose, James started screaming and ran out of the sprinkler area. I corralled him onto our towel and offered him books, snacks, cash, but all he wanted was for me to “tell that lady to put her balloons away!” Though he was 20-30 feet away from the action, he was impossible to calm down and continued screaming loudly with his hands over his ears. Damn, people were starting to stare at us. I started having Central Park Zoo flashbacks (see Balloon Vendors post). I offered for James to sit on a nearby bench, about 20 feet further away, and read a book. He tearfully complied but another %$#@ing balloon popped and he went crazy on the bench, still perfectly audible to the growing crowd of curious onlookers.

At this point my 2 yr old daughter raced down from the sprinkler area with her hands over her ears to comfort James. Watching them both “sit out” on the bench with their hands over their ears, one voluntarily and one empathetically, I felt like I should be doing something. I watch The Ringleader gleefully leading children around like the Pied Piper. I said irritably to my husband, “What is she thinking bringing balloons to the sprinklers? Couldn’t she be a little considerate of other people’s situations?,” to which he said something about balloons outside and it being a free country and blah, blah, blah. I didn’t have time for reason – my kids were missing out on sprinkler time! We were having a meetup for special needs children, for crying out loud! Come to think of it, where were all of the other balloon phobes?

I thought about explaining our situation to The Ringleader and asking her to put the balloon pump away for a bit. Though many other parents were openly staring at my blubbering 10 yr old, she had not so much as glanced in our direction – too focused on her balloon magic, I guess. But then I looked at the crowd of excited children she had racing around behind her and I felt my indignation deflate (pardon the pun). My husband hustled James over to another bench, about 50 feet further away and out of sight of the balloons. I mean, why should everyone else’s fun be ruined so that James could play in the sprinklers balloon-free, right?

Then I watched my 2 yr old chasing the balloons, her hands still clamped firmly over her ears in silent support of her brother. I could tell she was torn between sharing in the same carefree exhilaration as all of the other children and comforting her very upset brother, who was far, far away from the balloons.

All joking aside, this is not an easy thing to watch your toddler struggle with. In fact, it makes my heart ache a little that she is learning this kind of empathy at such a young age. I don’t want her to see balloons  and feel a sense of panic, anxiety, unhappiness, worry or tension. I don’t want her to step on a sheet of bubble wrap at home and be chastised as James runs into his room hysterical. At 2 years old she should be able to see Curious George floating in the air with 50 balloons and not think he is scared because the balloons might pop!

We are not “soft” on James’s phobias – just last week I was bragging about how many he was able to overcome on our beach vacation, with a little coaching (and some neat props!). But balloons, popping, potential popping, things that sound like popping – this phobia has only gotten worse over the years and there seems to be no stopping it. It’s right up there with blood pressure cuffs and taking the elevator alone. Does it affect our daily life? Not really. Did my 2 yr old accidentally pop a plastic bag today and send James into a panic for the rest of the afternoon, in which he hid under the covers and cried every time he heard a noise (a book dropping, broom handle hitting the wall, toys crashing into a box, door closing too loudly)? You betcha.

So I’m passing the buck this time. What would you do if it was your child at the sprinklers? I know, you’ll need to use your imagination in a big way. But seriously, I’d like your opinion. Vote for what you think is the best answer in the poll to your right, or check Other and leave your potential solution in the Comments section.

Come See DMF Sing the National Anthem Tomorrow!

Just a reminder that if it doesn’t rain too much, DMF will be singing at the Brooklyn Cyclones in Coney Island tomorrow. I plan to bring the kids and my dad a little early to enjoy what should be an empty beach beforehand.

For those of you who missed my previous invitation, the Brooklyn Cyclones play in Coney Island and their stadium has an ocean view. Add to that the beach, aquarium, boardwalk and even a circus nearby and you could make a day of it – it’s a Wednesday with a 50% chance of rain, so not a crowded day, either. The stadium is an easy subway ride so no rush hour traffic to worry about. The game is at 7:05pm on a school night, so we may have to miss a little bit of school that day (or sleep in the next day) but I’m sure the kids will forgive me.

DMF sings the anthem on the field before the game and then we’ll stay and have a blast in a section together. There are only a few tickets left at the price listed below, but I’m sure you could get tickets at the box office tomorrow too. If you would like to order tickets or find out more, see the email copied below:

To our friends,

Hope all is well!

Just a reminder that Daniel’s Music Foundation will be singing the National Anthem again at the June 22nd Brooklyn Cyclones game (starts at 7:00PM). Last year was a memorable evening and we decided to do it again and the Cyclones agreed!

The cost of each ticket is $16.One of our members, Artie Elefant is coordinating this effort. Please contact him directly canarsieboy45@aol.com or on his cell phone at (917) 328-1352 if you are interested in joining us. And of course, you can always contact us at daniel@danielsmusic.org.

We look forward to to seeing you there! Play ball!

Warm regards,

Daniel, Ken, Nancy and Mike

Hope you can make it to this unique, fun opportunity!